The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 07 January 2016 07 January 2016
Our Association has been invited to nominate a representative to the Technical Development Workgroup, sponsored by the Centers for Disease Control and Prevention, ME/CFS program. Our nominee, a patient and Board member, not only has a background in public health but will also bring the patient's voice to this project. This project will begin shortly and is expected to terminate sometime in 2017.
- Last Updated: 03 April 2016 03 April 2016
Up to 60% of Fibromyalgia patients in some studies show evidence of Small Fiber Polyneuropathy (SFPN), a condition which shares many symptoms with Fibromyalgia and which may be treatable. Dr. Khosro Farhad spoke about this topic and reviewed recent research on SFPN at a public talk sponsored by the Massachusetts CFIDS/ME & FM Association on Nov. 14, 2015 at Newton-Wellesley Hospital, Newton, Massachusetts.
- Video of the talk is posted here and video of the Q&A is posted here.
- Dr. Farhad's slides are posted here.
- The chart for diagnosing Fibromyalgia according to the 2011 criteria from the American College of Rheumatology is posted here.
- A list of blood and other test to consider for diagnosing Small Fiber Polyneuropathy is posted here.
Disclaimer: There materials are provided only for convenience so that you can print them out and take them to discuss with your health care provider.
Please note this correction from Dr. Farhad: "When I spoke about the diagnosis of fibromyalgia based on American College of Rheumatology criteria, there was a mistake in my explanation. The patients need to answer “yes” to the first question and “no” to the second question in the third box [questions 4 and 5, see slide 3]. I mentioned patients should answer yes to both questions, which is not correct."
- Last Updated: 26 April 2018 26 April 2018
View the video of Linda Tannenbaum's 2017 Open Medicine Foundation lecture, "ME/CFS Research Update"
View the video of Dr. Anthony Komaroff's 2016 lecture, "ME/CFS: A Surge of Interest and Knowledge"
View the video of Dr. Khosro Farhad's 2015 lecture, "Fibromyalgia and Small Fiber Polyneuropathy"
View the video of Dr. Anthony Komaroff's 2013 lecture, "CFS Research: Recent Progress and Challenges"
View the video of Dr. Jo Solet's 2013 lecture, “The Science of Sleep”
View the video of Dr. Byron Hyde's 2012 lecture, “Why Doctors Can’t Diagnose and What Tests Should be Considered”
View the video of Dr. David Bell's 2011 lecture, "25 Year Follow-up in Chronic Fatigue Syndrome: Rising Incapacity"
View the video of Dr. Anthony Komaroff's 2010 lecture, "The Latest Research on CFS"
- Last Updated: 08 January 2016 08 January 2016
With the present implementation of the federal Affordable Care Act (the new federal health care law), it is useful to review and update some of the eligibility requirements for medical benefits under Medicare and, in Massachusetts, for Medicaid and the Health Care Safety Net.
- Last Updated: 08 January 2016 08 January 2016
Mitochondrial Dysfunction, Post-Exertional Malaise and CFS/ME
This extensive review, written for both lay and professional readers, explains the role of mitochondria in cellular function and describes the characteristics and consequences of mitochondrial dysfunction fatigue in skeletal muscle. Illnesses with mitochondrial dysfunction are reviewed, including CFS/ME. Some treatments that are used are also described, as well as notes regarding exercise for patients with CFS/ME. There is an extensive bibliography.
Dental caries and oral problems have a strong and proven link to poor salivation and persistent dry mouth. Dry mouth and various oral and dental complications are problematic for many people with Chronic Fatigue and Immune Dysfunction Syndrome/Myalgic Encephaloyelitis (CFIDS/ME), and/or Fibromyalgia (FM). Persistent dryness could indicate an autoimmune illness like Sjögren's, linked to poorly functioning or damaged salivary glands, or be the result of side effects associated with many medications. Either way, it is a serious problem that warrants prompt medical or dental attention. Read more at Oral Complications in Sjögren's Syndrome and Chronic Dry Mouth.
Notice about names
The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.
Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.